When people question the value of Susan Marino's work, she tells the story of a 2-year-old boy she cared for many years ago when she was still a young nurse. Sean had spina bifida and had already endured 10 surgeries, including a tracheotomy and a colostomy. He was paralyzed and his misshapen spine was crushing his lungs.
"One day while we were eating breakfast I said, 'Poor Sean. He will never be able to do the things so many other children can.' Before I even had the words out of my mouth his mother looked at me with daggers in her eyes.


